Smith Magenis Syndrome



This Program is a wonderful opportunity to access the latest information regarding Smith Magenis Syndrome, network with other parents, offer understanding and experience to new families.

Our guest speaker during the program will be Professor Ann Smith, who is the co-discoverer of the syndrome and has vast knowledge and research to pass on to all families. Ann will be joined by Gail Koop and Dr Gail Reiner who makes up our Team USA. There will be group sessions over the weekend, for all families and day visitors, to attend.

Our aim in holding these SMS programs is:

  • To celebrate the achievements of all children diagnosed with SMS.
  • To give the child, diagnosed with SMS, a chance to mix with other children with the same diagnosis.
  • To provide an environment where ‘SMS families can enjoy a holiday together.
  • To give the siblings, of children diagnosed with SMS, an opportunity to talk with other siblings in a similar situation.
  • To create an atmosphere where parents feel comfortable to discuss their situation with other parents in a similar position.
  • To pamper the parents and allow “parents only” time, whilst providing entertainment for the child with SMS, and their siblings.
  • To provide information to newly diagnosed families and the opportunities to meet other ‘SMS families’.
  • To raise awareness of SMS

Places are limited so please complete the online form here to let us know you are interested in attending.

Upcoming Dates

Event Details

Camp Breakaway is located on the edge of Lake Budgewoi on the NSW central coast and surrounded on three side by bushland. The Campus is fully fenced and gated.

Facilities include 3 lodges, 16 cabins, 8 A-frame cabins, tennis court and playground.

The registration fees for parents attending the 4-day program (excludes Day Vistors) is $550 per family, which is in addition to the quoted fee for your child’s care.

You may be able to receive funding from your child’s NDIS plan under the category of, CB Improved Daily Living – Training for Carers/Parents to cover the cost of the registration. fee.

We only have places to accommodate 12-14 families onsite. The accommodation onsite is in our well-appointed cabins and our A-frame cabins are a fun option for older siblings. Our committee will give preference to newly diagnosed children and families where the child diagnosed with SMS is under 16 years of age.

For participants in residence, we will be providing care for your child for the duration of the program to allow you to focus on the information sessions and take part in the social program. 

The cost of the care plan can vary depending on the needs of the individual. Fees are usually covered in your child’s NDIS plan under the category of Short-Term Accommodation or STA. This covers 24hr Care and Assistance for your child, including all food and accommodation, plus all activities.

In addition to the families that will be staying on site, we extend an invitation to parents from SMS families at a reduced cost, to attend during the day, with or without their SMS child.

All your meals and activities would be provided at Breakaway, at a small cost, which we will communicate to those interested.

How to Apply

If you would like to attend the Breakaway SMS Camp, please complete the online Expression of Interest form.

If you have any questions, please feel free to contact us anytime

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